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Karen Birmingham Pioneering Ethics in a Longitudinal Study (Hardback)
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eBay item number:335182351583
Item specifics
- Condition
- Book Title
- Pioneering Ethics in a Longitudinal Study
- Publication Name
- Pioneering Ethics in a Longitudinal Study : The Early Development of the ALSPAC Ethics and Law Committee
- Title
- Pioneering Ethics in a Longitudinal Study
- Subtitle
- The Early Development of the ALSPAC Ethics and Law Committee
- Format
- Hardcover
- EAN
- 9781447340386
- ISBN
- 9781447340386
- Publisher
- Bristol University Press
- Genre
- Society & Culture
- Topic
- Social Sciences
- Release Date
- 17/01/2018
- Release Year
- 2018
- Country/Region of Manufacture
- GB
- Item Height
- 0.7in
- Item Length
- 7.7in
- Language
- English
- Publication Year
- 2018
- Type
- Not Available
- Item Width
- 5in
- Item Weight
- 12.4 Oz
- Number of Pages
- 136 Pages
About this product
Product Information
The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as "Children of the 90s," is an unprecedented birth cohort study that, uniquely, enrolled participants in utero and obtained genetic material from a geographic population. This book describes the early work of the committee, from establishing the core ethical principles necessary to protect participants to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention, disclosure of individual results, data access, and security. The book will be of interest to those involved in other cohort studies who want to understand the evolution of ethical policies as ALSPAC developed.
Product Identifiers
Publisher
Bristol University Press
ISBN-10
1447340388
ISBN-13
9781447340386
eBay Product ID (ePID)
240308711
Product Key Features
Publication Name
Pioneering Ethics in a Longitudinal Study : The Early Development of the ALSPAC Ethics and Law Committee
Format
Hardcover
Language
English
Publication Year
2018
Type
Not Available
Number of Pages
136 Pages
Dimensions
Item Length
7.7in
Item Height
0.7in
Item Width
5in
Item Weight
12.4 Oz
Additional Product Features
Lc Classification Number
Q180.55.M67
Table of Content
IntroductionPart One: ALSPAC Ethics and Law Committee: a new conceptone Preliminaries and pioneers: framing the questionstwo Informal or casual: an unusual stylethree Advisory to independent: a missed opportunityfour Bureaucratic battles: liaison with the Local Research Ethics CommitteesPart Two: Policy development: a case of case lawfive Confidentiality and anonymity: a rod for their own backssix Informed consent: too much informationseven Child protection: an observational study?eight Disclosure of individual results: foreseen feedback and incidental findingsnine Disclosure of individual results: participants' requeststen Participants' problems: people not policieseleven External databases: anonymous linkagePart Three: Beyond policy: a broad remittwelve Retention of the Cohort: incentives or inducementsthirteen Commercial collaborations: selling our soulsfourteen Comprehensive oversight: undocumented and unacknowledgedfifteen Influence beyond ALSPAC: extension of expertiseConclusions
Copyright Date
2018, 2017
Target Audience
Scholarly & Professional
Topic
Ethics, Sociology / General, General, Research, Epidemiology
Genre
Family & Relationships, Medical, Référence, Social Science
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